The disabkids questionnaires

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Quality of life (QoL) assessment in children with chronic health conditions and disabilities must be age-appropriate and address both health-related and disease-specific concerns in a balanced manner. The DISABKIDS modular approach has effectively addressed these challenges in international pediatric QoL research by offering modules tailored for specific age groups and health conditions while also being applicable across various subgroups. Developed through a European cross-cultural multi-centre study, the DISABKIDS questionnaires enable comparisons of different conditions across diverse healthcare systems and facilitate multinational clinical studies. The DISABKIDS teams employed a simultaneous approach to cross-cultural instrument development, ensuring the measures' applicability across cultures. This handbook provides essential user information, including psychometrics and reference data, necessary for applying the DISABKIDS questionnaires. The authors include a diverse group of experts from various fields, contributing to the comprehensive nature of this resource.